A BRITISH family have vowed to make themselves HOMELESS to fund £160,000 life saving proton beam therapy in the USA for their seven year old daughter who they fear will not live until Christmas otherwise. Frankie-Rose Lea was diagnosed with a rare brain tumour in August this year after her symptoms were originally dismissed as growing pains. The tumour has tripled in size since she started conventional chemotherapy treatment and has now spread to her spine. Medics say her best chance of survival is proton beam therapy in the USA, the same treatment sought by the family of Ashya King, but applying for funding on the NHS will take up to eight weeks, time Frankie doesn’t have because her tumour is growing so fast. So her parents who also have two sons, Alfie, 11 and  Freddie, five, have put their three bedroom home in Erith, Kent, on the market in a desperate bid to raise enough to save her life. They say the terrace property is worth £220,000 but are marketing it at £170,000 in a bid to attract a cash buyer for a quick sale. Dinner lady Michelle Lea, 36, and father Sam Lea, 34, who runs a small garden supply business, say they are prepared to be homeless if it saves their daughter’s life. Mrs Lea said: ‘ We are desperate. Right now all we can think about is getting Frankie to America for the treatment she needs to survive. We will live in a box if we need to as long as we are together.’ ‘We have worked hard, our house is all we have but we will sell it to save her. ‘Some people might criticise us for making the family homeless when we have two other children but I would rather do that than have to tell her brothers we let Frankie die. What choice do we have ? If we wait for NHS funding it will probably be too late.’ Frankie began complaining of pain in her legs in May this year. Mrs Lea said: ‘ Frankie said her legs were aching, so I told her to rest. Like most kids her age she was always on the go but when it got worse I took her to the doctor who said it was just growing pain.’ But in the weeks that followed Mrs Lea noticed her daughter falling over and bruising on her legs. She went back to the GP and says she was told this time that Frankie-Rose was flat footed which was causing her balance problems. But unconvinced Mrs Lea took her daughter back again and says she was advised to take her for an eye test and again told the pain was growing pain. When her daughter’s pain got worse she arranged further visits and says on the sixth occasion she was annoyed to have been booked to see a locum GP. ‘I felt he wouldn’t know my daughter and made that clear. But to my surprise he was the first to perform a basic neurological test by asking Frankie to follow his finger with her eyes. She couldn’t do it and he told me to get straight to hospital for an MRI scan.’ At Darent Valley Hospital in Kent, an MRI revealed a dangerous build up of fluid on the little girl’s brain and she was sent by ambulance to Kings College Hospital in London for urgent surgery the following morning. The operation on July 18th this year revealed a mass on her brain stem was causing the build up. Mrs Lea said: ‘ I was shocked. You never think it will happen to you.  But at the same time I had known all along it was something more serious than growing pains. The following week a biopsy revealed the tumour was cancerous and on August 4th the devastated couple were told the rare nature of high grade Astrocytoma giloma’s in children made it hard to predict how she would respond to treatment. But the position on the brain stem made it impossible to operate on and medics hoped to stabilise it with chemotherapy followed by radiotherapy when she was older and her brain more developed. Mr and Mrs Lea were due to marry later that month on August 23rd and Mrs Lea originally wanted to call off the wedding they had booked back in January but Frankie was desperate to be a bridesmaid. She explains; ‘ We’d been so busy in hospital that I hadn’t arranged the cars or wedding shoes, it was the last thing on my mind but doctors advised us to go ahead with the wedding because Frankie was well enough and she was looking forward to it.’ But first Frankie turned seven on August 15th and the family hastily arranged a huge party not knowing if it would be her last. Two weeks later the couple married in a church ceremony followed by reception for family and friends and Frankie reveled in her role as chief bridesmaid. Mrs Lea said: ‘ It was all about her, there wasn’t a dry eye in the house because nobody knew what the future held. ‘She had lost some of her hair because of the surgery but she looked so beautiful.’ Frankie started chemotherapy two days later on Monday 25th but she suffered terrible side effects including nausea, weight loss and a bleed on the brain. And when medics scanned her last week the tumour was found to have tripled in size and spread to her spine. That’s when they were told proton beam therapy offered the best chance of saving her life and there was no time to waste. The family set up a fundraising page and well wishers have already pledged £20,000 but the family need to raise a further £140,00 for treatment and travel in the next week. They put their house on the market for £170,000 this week and say making themselves homeless will be a small price to save their daughter’s life. ‘It would be nice to have a home to come back to after America, but nothing is more important than saving Frankie.’

http://www.gofundme.com/h3upn4

A BRITISH family have vowed to make themselves HOMELESS to fund £160,000 life saving proton beam therapy in the USA for their seven year old daughter who they fear will not live until Christmas otherwise. Frankie-Rose Lea was diagnosed with a rare brain tumour in August this year after her symptoms were originally dismissed as growing pains. The tumour has tripled in size since she started conventional chemotherapy treatment and has now spread to her spine. Medics say her best chance of survival is proton beam therapy in the USA, the same treatment sought by the family of Ashya King, but applying for funding on the NHS will take up to eight weeks, time Frankie doesn’t have because her tumour is growing so fast. So her parents who also have two sons, Alfie, 11 and  Freddie, five, have put their three bedroom home in Erith, Kent, on the market in a desperate bid to raise enough to save her life. They say the terrace property is worth £220,000 but are marketing it at £170,000 in a bid to attract a cash buyer for a quick sale. Dinner lady Michelle Lea, 36, and father Sam Lea, 34, who runs a small garden supply business, say they are prepared to be homeless if it saves their daughter’s life. Mrs Lea said: ‘ We are desperate. Right now all we can think about is getting Frankie to America for the treatment she needs to survive. We will live in a box if we need to as long as we are together.’ ‘We have worked hard, our house is all we have but we will sell it to save her. ‘Some people might criticise us for making the family homeless when we have two other children but I would rather do that than have to tell her brothers we let Frankie die. What choice do we have ? If we wait for NHS funding it will probably be too late.’ Frankie began complaining of pain in her legs in May this year. Mrs Lea said: ‘ Frankie said her legs were aching, so I told her to rest. Like most kids her age she was always on the go but when it got worse I took her to the doctor who said it was just growing pain.’ But in the weeks that followed Mrs Lea noticed her daughter falling over and bruising on her legs. She went back to the GP and says she was told this time that Frankie-Rose was flat footed which was causing her balance problems. But unconvinced Mrs Lea took her daughter back again and says she was advised to take her for an eye test and again told the pain was growing pain. When her daughter’s pain got worse she arranged further visits and says on the sixth occasion she was annoyed to have been booked to see a locum GP. ‘I felt he wouldn’t know my daughter and made that clear. But to my surprise he was the first to perform a basic neurological test by asking Frankie to follow his finger with her eyes. She couldn’t do it and he told me to get straight to hospital for an MRI scan.’ At Darent Valley Hospital in Kent, an MRI revealed a dangerous build up of fluid on the little girl’s brain and she was sent by ambulance to Kings College Hospital in London for urgent surgery the following morning. The operation on July 18th this year revealed a mass on her brain stem was causing the build up. Mrs Lea said: ‘ I was shocked. You never think it will happen to you.  But at the same time I had known all along it was something more serious than growing pains. The following week a biopsy revealed the tumour was cancerous and on August 4th the devastated couple were told the rare nature of high grade Astrocytoma giloma’s in children made it hard to predict how she would respond to treatment. But the position on the brain stem made it impossible to operate on and medics hoped to stabilise it with chemotherapy followed by radiotherapy when she was older and her brain more developed. Mr and Mrs Lea were due to marry later that month on August 23rd and Mrs Lea originally wanted to call off the wedding they had booked back in January but Frankie was desperate to be a bridesmaid. She explains; ‘ We’d been so busy in hospital that I hadn’t arranged the cars or wedding shoes, it was the last thing on my mind but doctors advised us to go ahead with the wedding because Frankie was well enough and she was looking forward to it.’ But first Frankie turned seven on August 15th and the family hastily arranged a huge party not knowing if it would be her last. Two weeks later the couple married in a church ceremony followed by reception for family and friends and Frankie reveled in her role as chief bridesmaid. Mrs Lea said: ‘ It was all about her, there wasn’t a dry eye in the house because nobody knew what the future held. ‘She had lost some of her hair because of the surgery but she looked so beautiful.’ Frankie started chemotherapy two days later on Monday 25th but she suffered terrible side effects including nausea, weight loss and a bleed on the brain. And when medics scanned her last week the tumour was found to have tripled in size and spread to her spine. That’s when they were told proton beam therapy offered the best chance of saving her life and there was no time to waste. The family set up a fundraising page and well wishers have already pledged £20,000 but the family need to raise a further £140,00 for treatment and travel in the next week. They put their house on the market for £170,000 this week and say making themselves homeless will be a small price to save their daughter’s life. ‘It would be nice to have a home to come back to after America, but nothing is more important than saving Frankie.’

http://www.gofundme.com/h3upn4